Correspond�ncia 05


-----Mensagem Original-----
De: Marcilio Dias dos Santos
Enviado: s�bado, 20 de abril de 2002 18:49
Para: Hugo Engel Gutterres
Cc: Cl�udia Streva
Assunto: usa X Br

Prezado Hugo,

� lamentavel que nos seja imposta uma regra dessa para para viagem aos USA.
.Voce falou no consulado que iria fazer tratamento? Nao me consta que aos turistas comuns se aplique tal norma. Mude o objetivo da viagem para turismo em las Vegas que eles nada exigir�o.
[ ] 's

Marc�lio Santos


-----Mensagem Original-----
De: Marcilio Dias dos Santos
Enviado: s�bado, 20 de abril de 2002 17:10
Para: Hugo Engel Gutterres
Assunto: Re: email responses

Hugo,
Andei traduzindo por aqui os avisos de J W-H que se encontram na home page do projeto. Eles ainda nao foram revisados e agradeceria qualquer contribui�ao nesse sentido. Acho que seria interessante voce dar uma olhada no de 3/10/99, onde ela falava da impossibilidade de atender solicita��es individuais. Lembro-lhe isso antes para tranquiliza-lo do que para dissuadi-lo de acertar a visita ao projeto, pois dou total apoio a sua iniciativa e me disponho a acompanh�-lo na viagem. Ademais, agua mole em pedra dura... Estou torcendo e aposto mesmo que ela vai enviar a carta que voce precisa para conseguir o visto dos USA.

Ponha seu coment�rio do filme no blog. H� pessoas achando que trata-se da hist�ria da dopamina, mas consideram que os pacientes do filme eram portadores de outras doencas (inclusive o menino Leonard) que n�o a DP. Confesso a voc� que achei os sintomas desse personagem muito diferentes daquilo que conheco por DP, mas ainda estou em d�vida pois sei que Oliver Sacks, autor do librono qual o filme � baseado, assessorou a produ��o.

[ ] 's marcilio

-----Mensagem Original-----
De: Hugo Engel Gutterres
Enviado: s�bado, 20 de abril de 2002 13:15
Para: Marcilio Dias dos Santos
Assunto: Re: email responses

Marc�lio,

J� assisti a ambos. Inclusive o Tempo de despertar, j� tem em DVD.
Da minha traduc�o s� duas p�ginas por ora.
Abracos.

Hugo
-----Mensagem Original-----
De: Marcilio Dias dos Santos
Para: Hugo Engel Gutterres ; Cl�udia Streva
Enviada em: Saturday, April 20, 2002 12:48 PM
Assunto: Re: email responses

Prezado Hugo,

Nada de novo. Janice vem dizendo isso desde 1999, Veja no site dela a nota de 3/10/99 sob o t�tulo "Patient Referral System Disabled". No presente email ela repete o que dizia ent�o. E convenhamos, ela tem raz�o. O mundo todo escreve pra l� e a metade seguramente pensa em poder visita-la ou fazer algum tipo de consulta. Se ela embarcar nessa os livros e relat�rios sofrer�o um atrazo, prejudicando a todos. Estou ultimando a tradu�ao do terceiro capitulo. Espero disponibiliz�-lo para criticas e correc�es na primeira semana de maio.

Voce assistiu os filmes que me recomendaram?

[ ] 's marcilio.

-----Mensagem Original-----
De: Hugo Engel Gutterres
Enviado: s�bado, 20 de abril de 2002 11:56
Para: Marcilio Dias dos Santos; Cl�udia Streva
Assunto: Fw: email responses

> �GUA FRIA NA FERVURA!
> ESTOU H� UMA SEMANA TENTANDO SAIR DESSA.
> POR ESTA E POR OUTRAS, ...
> HUGO
> O QUE FA�O?
>
> -----Mensagem Original-----
> De: "Parkinson's Recovery Project"
> Para: "Hugo Engel Gutterres"
> Enviada em: Tuesday, April 16, 2002 10:22 PM
> Assunto: email responses
>
> > Due to an overwhelming increase in email in the past few months, I can no
> > longer keep up with the incoming email. Although a few volunteers have
> > offered to help with the email correspondence, they are not usually able to
> > answer the specific questions being asked, most of which are demanding
> > highly specific information which only a Parkinson's specialist can
> > provide. There is no one else available at this time who has the spare time
> > and the depth of information necessary to be able to field these requests.
> > We have no grant money and no outside source of funds, so there is not
> > money available to pay for any of my very busy colleagues to field the
> > incomings questions. Therefore, the email technical support line will not
> > be continued. For those of you who have been waiting several weeks for a
> > response to your email, hopefully, your emails will be answered in the next
> > few weeks. Any emails received after today, April 16, 2002, will very
> > possibly not be answered.
> >
> > The list of people wanting to come to Santa Cruz for an evaluation is
> > growing too long. The logistics of treating so many people is becoming
> > unmanageable. There is a real concern that, as the number of people per
> > week being treated increases, the quality of treatment must suffer.
> > Certainly, it places a strain on the amount of work that can be done on
> > compiling information and writing up what we are seeing. At this point
> > there are thousands of pages of cryptic patient notes that might be of
> > interest to the medical world if there was ever time to transcribe them
> > all. But with the ever-increasing load of patients and emails, those files
> > are being ignored. I am hoping to make a change in that.
> > Therefore, for now, until a better system of organization is put in place,
> > and someone steps forward to do the organizational work previously done by
> > me, the clinic in Santa Cruz will no longer be having guests or offering
> > assessments to out-of-area visitors. Appointments already confirmed will be
> > honored. The work load has become far too great, and I have had to make the
> > difficult decision to focus on the book on medications which I hope to
> > finish by next year, and a new edition of the Recovery Handbook to replace
> > that which is currently on the website. The new edition will have much more
> > information about recovery symptoms, and the wide range of responses to the
> > program that we have observed in the four years since the project first
> > posted its finding. In the long run, my writing on medication and
> > Parkinson's in general will hopefully be of the greatest help to the
> > greatest number, and a better use of my time than spending the bulk of my
> > morning and evenings answering individual emails.
> > A few chat groups have arisen, founded by people who are either attempting
> > to use the methods of our project or who have Parkinson's themselves. I
> > hope that interested parties will use these groups to raise questions and
> > offer suggestions to each other.
> > Please wish me luck in my writings, and I will make them available on the
> > internet as soon as they are presentable.
> >
> > -Janice Walton-Hadlock

-----Mensagem Original-----
De: Hugo Engel Gutterres
Enviado: s�bado, 20 de abril de 2002 11:53
Para: Marcilio Dias dos Santos; Cl�udia Streva
Assunto: Fw: Evaliation at PRP clinic in Santa Cruz

> AQUECENDO A �GUA!
>
> leiam de baixo p/ cima.
>
>
> -----Mensagem Original-----
> De: "Hugo Engel Gutterres"
> Para: "Parkinson's Recovery Project"
> Enviada em: Tuesday, April 16, 2002 7:34 AM
> Assunto: Re: Evaliation at PRP clinic in Santa Cruz
>
>
> > Mrs. Janice,
> >
> > I readed the handbooks. I know about the possible recuperation process is
> > like a "trip", a long trip ...
> > Now, I involved in procedures to obtain my Visa in USA consular office.The consular
>> office requires a official letter to justify the voyage. A letter
> > from the place where I'll do my treatment, evaluation.

> > So I need a official letter, as soon as possible, from PRP that explicitates
> > my appointment to be received on next may at your clinic to do a Parkinson
> > Disease Treatment.
> >
> > It must be sended by a conventional mail (in paper).
> >
> > Destinatary: Hugo Engel Gutterres
> > Adress: Av Nova York, 547/301 - Higien�polis
> > PORTO ALEGRE - RS - BRAZIL
> > 90550-070
> >
> > Thanks
> >
> > -----Mensagem Original-----
> > De: "Parkinson's Recovery Project"
> > Para: "Hugo Engel Gutterres"
> > Enviada em: Saturday, April 13, 2002 2:42 PM
> > Assunto: Re: Evaliation at PRP clinic in Santa Cruz
> >
> >
> > > Sufficient? sufficient for what... to effect a cure? no, of course not.
> > > sufficient to evaluate your case? yes, but that can also be done in just
> > > one session or two. but most people who travel a long distance usually stay
> > > for a week or ten days, getting up to three treatments per day. if their
> > > practitioner comes, they usually stay for several days, at least, to get an
> > > opportunity to study what we do.
> > >
> > > It is completely up to you how long you stay.
> > >
> > > right now we are making appointments for late May. let me know when you
> > > know your schedule, and when you might like to come.
> > >
> > >
> > > jj
> > >
> > >
> > >
> > > At 11:02 AM 4/13/2002 -0300, you wrote:
> > > >Mrs. Janice,
> > > >
> > > >After reading the attachaments, I can say: I'm must interested to come to
> > > >your clinic to evaluate my treatment!
> > > >So I'd write before, the treatment with your protocols demands 13 months yet.
> > > >
> > > >I intend to demand two weeks between you. Is this time usually and
> > > >sufficient?
> > > >
> > > >Thanks.
> > > >
> > > >Hugo
> > > >
> > > >
> > > >-----Mensagem Original-----
> > > >De: "Parkinson's Recovery Project"
> > > >Para: "Hugo Engel Gutterres"
> > > >Enviada em: Saturday, April 13, 2002 1:47 AM
> > > >Assunto: Re: Evaliation at PRP clinic in Santa Cruz
> > > >
> > > >
> > > >> It would be possible for you to come to our clinic to evaluate you and to
> > > >> give treatments. I am attaching a little bit of information about our
> > > >> program and what we offer here in Santa Cruz. Be aware that the
> > > >> medications complicate matters very much, and we are not able to legally
> > > >> discuss any medication issues with you.
> > > >>
> > > >> let me know if, after reading the attachments, you are stil interested in
> > > >> coming to visit,
> > > >>
> > > >>
> > > >> Janice
> > > >>
> > > >> At 04:18 PM 4/12/2002 -0300, you wrote:
> > > >> >Mrs. Janice,
> > > >> >
> > > >> >I have good tolerance to stop and go with Levodopa. Sometimes spend 6
> > > >>>days without drugs. So, when necessary, on cause of work, I take one pill of
> > > >> >Carbidopa (25 mg) + Levodopa (250 mg) and one hour after I'm "good". The
> > > >> >"on" period demand 3 hrs +/-.
> > > >> >My neurologist advice me to use this medication like a prompt always when
> > > >> >necessary. I take this drug 30 minutes before or after of a food.
> > > >> >
> > > >> >The same don't happend with Pramipexol (Sifrol / Mirapex 1 mg), which I
> > > >> >can't stop and go. The ingestion must be gradual (one week 0,25 mg, another
> > > >> >week 0,50 mg, third weeek 1 mg). If I ingest abrupt dose, like 1 mg, I
> > > >> >became, +/- 3 to 4 hrs late, to vomit. About this I don't use this medicine
> > > >> >anymore, for a while.
> > > >> >
> > > >> >Thanks.
> > > >> >Sorry my english.
> > > >> >
> > > >> >Hugo Engel Gutterres
> > > >> >
> > > >> >-----Mensagem Original-----
> > > >> >De: "Parkinson's Recovery Project"
> > > >> >Para: "Hugo Engel Gutterres"
> > > >> >Enviada em: Friday, April 12, 2002 2:24 PM
> > > >> >Assunto: Re: Evaliation at PRP clinic in Santa Cruz
> > > >> >
> > > >> >
> > > >> >> what medications, if any, are you taking?
> > > >> >>
> > > >> >> jj
> > > >> >>
> > > >> >>
> > > >> >> At 10:45 AM 4/12/2002 -0300, you wrote:
> > > >> >> > Mrs Janice, I'm Hugo, 46, from Porto Alegre city, Brazil, pk
> > > >> >> >diagnostic 4 years, submit JW-H protocol by 13 months. I'm
> > > >>>>>>desesperate because I can't walk without to drag my left foot for 6 months
> > > >>>>>>moreless, became worse. I can walk on tiptoes only, so quickly. Is it hell stagium
> > > >> >> >foreseen? Could I and a friend of mine (pk too) be receive at JW-H PRP
> > > >> >> >clinic to an evaliation? intend make an appointment to 2nd half of
> > > >>>>>>next may. Thanks, Hugo Engel Gutterres
> > > >> >>